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翻訳と辞書　辞書検索 [ 開発暫定版 ] スポンサード リンク Canadian Organization for Rare Disorders ： ウィキペディア英語版 Canadian Organization for Rare Disorders The Canadian Organization for Rare Disorders (CORD) is a Canadian registered charity that is a network of organizations who represent people affected by rare diseases. CORD's purpose is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders. ==Overview== CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada's Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders.〔 Currently, Durhane Wong-Rieger is the President of CORD. Their national offices are located in Toronto, Ontario, with an Alberta chapter located in Edmonton, Alberta.〔 抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』 ■ウィキペディアで「Canadian Organization for Rare Disorders」の詳細全文を読む スポンサード リンク 翻訳と辞書 : 翻訳のためのインターネットリソース Copyright(C) kotoba.ne.jp 1997-2016. All Rights Reserved.